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ULF Board Member and advocate Donna has a niece, Isabella, affected by leukodystrophy, and shares how the diagnosis transformed her family and deepened her commitment to hope. “Leukodystrophy changed our family forever. At first, we didn't even know how to spell leukodystrophy. It brought fear, uncertainty, and unimaginable challenges. Moreover, it revealed a depth of love, resilience, and community we never knew existed. It empowered me to engage more deeply with the leukodystrophy community an
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